{"id":9089,"date":"2026-04-16T17:05:55","date_gmt":"2026-04-16T21:05:55","guid":{"rendered":"https:\/\/canadabiznews.ca\/press-releases\/pr\/canada-lights-up-purple-for-international-mps-awareness-day-on-may-15th\/"},"modified":"2026-04-16T17:05:55","modified_gmt":"2026-04-16T21:05:55","slug":"canada-lights-up-purple-for-international-mps-awareness-day-on-may-15th","status":"publish","type":"press-releases","link":"https:\/\/canadabiznews.ca\/press-releases\/pr\/canada-lights-up-purple-for-international-mps-awareness-day-on-may-15th\/","title":{"rendered":"Canada Lights Up Purple for International MPS Awareness Day on May 15th"},"content":{"rendered":"

On May 15, MPS Awareness Day, monuments across Canada will be illuminated purple. Post a picture of your local monument with #CanMPS and be entered to win $100!<\/i><\/p>\n

<\/div>\n
Our call to action is for every province in Canada to add MPS to their Newborn Screening, an essential first step. Diagnosis should not take 5 years.\u201d<\/b>\n
\u2014 Mary Bone, Executive Director of Canadian MPS Society<\/div>\n<\/div>\n

CANADA, April 16, 2026 \/EINPresswire.com<\/a>\/ — On May 15, International MPS Awareness Day<\/a>, monuments across Canada will be illuminated purple to raise awareness for Mucopolysaccharidosis (MPS), a group of rare, progressive and often life-limiting genetic disorders that primarily affect children.<\/p>\n

The Canadian MPS Society<\/a> is inviting Canadians to take part in a national “Light Up for MPS” social media challenge to help raise awareness and educate the public. Participants are encouraged to:
\u2022 Post a photo of a purple-lit monument or create their own \u201cpurple moment\u201d (wear purple, light up your porch, make a sign, colour a picture etc.)
\u2022 Share one fact you\u2019ve learned about MPS – Use the hashtag #CanadianMPSSociety<\/p>\n

All participants that enter go into a draw to win the $100 Amazon gift card. Winner announced: May 18, 2026 (via Instagram)<\/p>\n

MPS is caused by the body\u2019s inability to break down certain complex sugars, leading to progressive damage to organs and tissues. While there is no cure, some of the seven different types have treatment options, and emerging gene therapies offer hope for the future.<\/p>\n

Early diagnosis through Newborn Screening is critical and will save and change children’s lives. Delays\u2014often averaging five or more years\u2014result in irreversible damage. It is estimated that 1 in 12 Canadians are affected by a rare disease. NOT SO RARE!<\/p>\n

\u201cOur call to action is for every province in Canada to add MPS to their Newborn Screening, an essential first step. Diagnosis should not take 5 years.\u201d \u2014 states Bone.<\/p>\n

Get Involved: <\/p>\n

Find participating “Light Ups<\/a>” at https:\/\/www.mpssociety.ca\/wp-content\/uploads\/2026\/04\/2026-MPSDay-Illumination-7-April-2026.pdf<\/a>
Post your picture on socials with #CanMPS
Be entered to win $100 Amazon gift card!<\/p>\n

Media Contact: Mary Bone, Executive Director, Canadian MPS Society info@mpssociety.ca<\/p>\n

COMMUNIQU\u00c9 DE PRESSE
Le Canada s’illumine en violet \u00e0 l’occasion de la Journ\u00e9e internationale de sensibilisation au syndrome de MPS, le 15 mai
Partagez votre moment violet et gagnez !<\/p>\n

Lieux : illuminations pr\u00e9vues partout au Canada (voir la liste ci-dessous et www.mpssociety.ca\/lightup<\/a>)<\/p>\n

Le 15 mai, \u00e0 l’occasion de la Journ\u00e9e internationale de sensibilisation aux MPS, des monuments \u00e0 travers tout le Canada seront illumin\u00e9s en violet afin de sensibiliser le public \u00e0 la mucopolysaccharidose (MPS), un ensemble de maladies g\u00e9n\u00e9tiques rares, \u00e9volutives et souvent mortelles qui touchent principalement les enfants.<\/p>\n

L’Association canadienne des MPS invite les Canadiens \u00e0 participer \u00e0 un d\u00e9fi national sur les r\u00e9seaux sociaux intitul\u00e9 \u00ab Light Up for MPS \u00bb afin de sensibiliser et d’informer le public.<\/p>\n

Les participants sont invit\u00e9s \u00e0:
\u2022 Postez une photo d’un monument illumin\u00e9 en violet ou cr\u00e9ez votre propre \u00ab moment violet \u00bb (portez du violet, illuminez votre porche, fabriquez une pancarte, coloriez un dessin, etc.)
\u2022 Partagez une chose que vous avez apprise sur le syndrome de MPS \u2013 Utilisez le hashtag #CanadianMPSSociety<\/p>\n

Tous les participants inscrits seront tir\u00e9s au sort pour remporter une carte-cadeau Amazon d’une valeur de 100 $. Annonce du gagnant : 18 mai 2026 (sur Instagram)<\/p>\n

Les MPS sont caus\u00e9es par l’incapacit\u00e9 de l’organisme \u00e0 d\u00e9composer certains sucres complexes, ce qui entra\u00eene des l\u00e9sions progressives des organes et des tissus. Bien qu’il n’existe aucun rem\u00e8de, certaines des sept formes diff\u00e9rentes peuvent \u00eatre trait\u00e9es, et les nouvelles th\u00e9rapies g\u00e9niques offrent un espoir pour l’avenir.<\/p>\n

Un diagnostic pr\u00e9coce gr\u00e2ce au d\u00e9pistage n\u00e9onatal est essentiel et permettra de sauver et de changer la vie des enfants. Les retards \u2014 souvent de cinq ans ou plus en moyenne \u2014 entra\u00eenent des l\u00e9sions irr\u00e9versibles. On estime qu\u2019un Canadien sur douze est atteint d\u2019une maladie rare. CE N\u2019EST PAS SI RARE !<\/p>\n

\u00ab Nous appelons toutes les provinces du Canada \u00e0 ajouter la MPS \u00e0 leur programme de d\u00e9pistage n\u00e9onatal, une premi\u00e8re \u00e9tape essentielle. Le diagnostic ne devrait pas prendre cinq ans \u00bb, d\u00e9clare M. Bone.<\/p>\n

Participez : D\u00e9couvrez les \u00ab Light Ups \u00bb participants et rejoignez-nous :
www.mpssociety.ca<\/a> #CanMPS # Canadianmpssociety<\/p>\n

Lieux d’illumination MPS : https:\/\/www.mpssociety.ca\/wp-content\/uploads\/2026\/04\/2026-MPS-Day-Illumination-7-April-2026.pdf<\/a><\/p>\n

Contact presse : Mary Bone, directrice g\u00e9n\u00e9rale, Soci\u00e9t\u00e9 canadienne du syndrome de MPS, Portable: 647-282-1225<\/p>\n

** Veuillez excuser les \u00e9ventuelles erreurs de transcription. Nous utilisons DeepL pour nous aider.<\/p>\n

Mary Bone
\nCanadian MPS Society
\n+1 647-282-1225
\ninfo@mpssociety.ca<\/a>
\nVisit us on social media:
\nLinkedIn<\/a>
\nInstagram<\/a>
\nFacebook<\/a><\/p>\n

<\/div>\n

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\n EIN Presswire provides this news content “as is” without warranty of any kind. We do not accept any responsibility or liability
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\n article. If you have any complaints or copyright issues related to this article, kindly contact the author above.\n<\/p>\n

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On May 15, MPS Awareness Day, monuments across Canada will be illuminated purple. Post a picture of your local monument with #CanMPS and be entered to win $100! Our call to action is for every province in Canada to add MPS to their Newborn Screening, an essential first step. Diagnosis should not take 5 years.\u201d … Read more<\/a><\/p>\n","protected":false},"featured_media":9090,"template":"","class_list":["post-9089","press-releases","type-press-releases","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/canadabiznews.ca\/press-releases\/wp-json\/wp\/v2\/press-releases\/9089","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/canadabiznews.ca\/press-releases\/wp-json\/wp\/v2\/press-releases"}],"about":[{"href":"https:\/\/canadabiznews.ca\/press-releases\/wp-json\/wp\/v2\/types\/press-releases"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/canadabiznews.ca\/press-releases\/wp-json\/wp\/v2\/media\/9090"}],"wp:attachment":[{"href":"https:\/\/canadabiznews.ca\/press-releases\/wp-json\/wp\/v2\/media?parent=9089"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}